"As soon as her condition improved it worsened," he noted. "It was always the same pattern entering ICU," he recalls, wash your hands with warm water and soap and then put on medical mask and gloves.
"I was an 11 year old boy," he wrote, "who had to do this just to watch my sister through a glass door of an isolation room."
Mollie's head had to be shave and her skin was covered in blisters. "Her whole body was wrapped in gauze to stop the bleeding blisters," SrA recalls.
SrA says Mollie could not even scream out in pain. "All she could do is cry because her vocal cords had been burned," he said.
After five months in the hospital Mollie was allowed to go home.
"Our living area transformed into that of a hospital room," SrA said, "it had a ventilator for her tracheotomy, iv stand, stomach tube stand, heart rate monitor, and medications galore."
Therapists came everyday and a nurse was always with Mollie giving her care. She required surgeries almost every other week to stretch her esophagus and the ligaments in her feet and hands and also had cornea surgery.
According to SrA, today Mollie cannot walk, see, or talk very well. "She is fed through a stomach tube and it's hard for her to breath," he says.
Before SJS, Mollie was a dancer. "She was suppose to perform in the opening show for the 1996 Olympics in Atlanta," her brother says. However, the room where she used to practice her dance moves and back flips has now become a rehabilitation center.
SrA says Mollie cannot receive any more therapy because of the healthcare budget cuts so his mother became a nurse to take care of Mollie.
SrA believes there needs to be more public awareness of the dangers associated with the drugs that cause this horrible reaction.
In January 2005, the Bextra related cardiovascular problems were back in the news when the results of two trials were released that showed the drug tripled the incidence of heart attack and stroke in coronary bypass graft surgery patients.
On February 14, 2005, the Associated Press reported that while Vioxx and Celebrex increased patients' risk of heart attack and stroke by about 20 percent, Bextra increased the risk by 50%, citing a study by WellPoint Inc.
In April 2005, Pfizer finally took Bextra off the market at the request of the FDA. At the same time, the FDA told Pfizer to include a black box warning on Celebrex.
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